A report examined partnership working between clinicians and patients. Not all of the gap between ideals and practice should be seen as mere 'resistance' or 'drag' on the part of healthcare professionals. Policy attempts to 'push' the involvement agenda – including the implementation of ideas such as concordance or shared decision-making – would not succeed, and might even be counter-productive, unless the practical and ethical challenges and dilemmas surrounding this agenda were explicitly addressed and fully reflected in policy initiatives and practice development.
Source: Alan Cribb, Involvement, Shared Decision-Making and Medicines, Royal Pharmaceutical Society of Great Britain
Links: Report
Date: 2011-Dec
A study examined what happened when older people were given the opportunity to shape the commissioning and delivery of health and personal care services. It raised wider questions about the impact of their involvement – particularly whether it could change the nature of local power relations in the long term.
Source: Gerald Wistow, Eileen Waddington, and Vanessa Davey, Involving Older People in Commissioning: More power to their elbow?, Joseph Rowntree Foundation
Date: 2011-Dec
An article examined whether an economic analysis of costs and benefits posed a threat or an opportunity for future public participation in health and social care. There was a need for innovative indicators that captured the costs and benefits of public participation, as well as appropriate resources for the economic analysis of such initiatives.
Source: Walid El Ansari and Edward Andersson, 'Beyond value? Measuring the costs and benefits of public participation', Journal of Integrated Care, Volume 19 Number 6
Links: Abstract
Date: 2011-Dec
A new book examined service user involvement in health and social care.
Source: Marian Barnes and Phil Cotterell (eds.), Critical Perspectives on User Involvement, Policy Press
Links: Summary
Date: 2011-Nov
A paper examined the critical issues that new clinical commissioning groups would need to address in developing patient and public engagement.
Source: Patient and Public Engagement in the New Commissioning System, NHS Confederation
Links: Paper | NHS Confederation press release
Date: 2011-Oct
An article examined the changes to patient and public involvement in the National Health Service proposed by the coalition government. The authors said that the proposals contained nothing that would guarantee a more effective engagement with either patients or the public.
Source: Anna Coleman, Kath Checkland, Imelda McDermott, and Stephen Harrison, ' Patient and public involvement in the restructured NHS', Journal of Integrated Care, Volume 19 Number 4
Links: Abstract
Date: 2011-Oct
An article examined the challenges faced by third sector organizations in facilitating service user influence in the National Health Service.
Source: Graham Martin, 'The third sector, user involvement and public service reform: a case study in the co-governance of health service provision', Public Administration, Volume 89 Issue 3
Links: Abstract
Date: 2011-Sep
An article examined how decision-makers in the healthcare sector involved the public in priority-setting, and how information from the public could be combined with other knowledge.
Source: Craig Mitton, Neale Smith, Stuart Peacock, Brian Evoy, and Julia Abelson, 'Integrating public input into healthcare priority-setting decisions', Evidence & Policy, Volume 7 Number 3
Links: Abstract
Date: 2011-Aug
A new book provided a comprehensive overview of patient engagement and participation in healthcare.
Source: Angela Coulter, Engaging Patients in Healthcare, Open University Press
Links: Summary
Date: 2011-Aug
Two linked reports examined the progress made by National Health Service foundation trusts in engaging with their local communities – through the recruitment of members and the election of governors.
Source: Current Practice in NHS Foundation Trust Member Recruitment and Engagement, Monitor | Survey of NHS Foundation Trust Governors 2010/11, Monitor
Links: Report (1) | Report (2) | Monitor press release
Date: 2011-Jul
An article examined the tension between economic and democratic strands in the coalition government's reform agenda for the National Health Service in England. It considered the limits of the legal and regulatory framework for patient and public involvement in decision-making.
Source: Peter Vincent-Jones, 'Embedding economic relationships through social learning? The limits of patient and public involvement in healthcare governance in England', Journal of Law and Society, Volume 38 Number 2
Links: Abstract
Date: 2011-Jun
An article examined the democratic potential of different arrangements for public participation, by reference to alternative rationales for democratic engagement in health services in England.
Source: Caroline Mullen, David Hughes, and Peter Vincent-Jones, 'The democratic potential of public participation: healthcare governance in England', Social and Legal Studies, Volume 20 Number 1
Links: Abstract
Date: 2011-Mar
